Category: Sav Van Der Walt

"Raising a child with unique needs is a continuous learning experience, and I’m grateful for every step we take forward. Join us as we unpack what 2025 will look like."

When Luna was diagnosed with Prader-Willi Syndrome, it felt like the world shifted beneath my feet. Questions flooded my mind. What would her life look like? Would she meet her milestones? How would I navigate this new reality? As the days turned into months, I learned to trade fear for resolve. Luna showed me her strength in those early days—through every therapy session, every tiny muscle movement, and every smile that lit up her face despite the obstacles she faced…. And she faced many as tiny as she was.

Hi, I’m Savannah, a proud mom of two beautiful kids—Luka, who is 9, and Luna, who is almost 3. Being a mother is a joy, but when your child has special needs, like Luna, it’s an experience unlike anything you could anticipate; nothing can prepare you. Luna was diagnosed at birth with a rare genetic condition called Prader-Willi syndrome (PWS).